
I lost my mother in August of 1999. She was 56 years young and was taken from us by Pancreatic Cancer. The whole 18 months, 12 of which we had no idea what was making her so ill went so fast it was like a whirlwind. We went from going to every doctor imaginable, going through tons of testing, from thinking it's got to be some kind of virus or condition they're just not finding and when they do all will be well. This all started for my mom in 1998. I had gotten married in Oct of that year but my mom was sick and so I decided we wouldn't have a wedding reception until she was well enough to attend. Because, "Ofcourse" they were going to find out what it was and fix it. In Feb of of 1999 mom was horribly sick one day and living about a 45 minutes away from me. The family, myself, my brother, my husband and my sister in law decided enough was enough that morning. She needed help and where she was living she was not getting it. My husband and sister in law left that morning to go get her and rush her down to Hackensack University Hospital. When the doctors saw her as she came in they rushed her in the back and told us we were lucky we got her there when we did she was hours from death. Her blood count had dropped so low she wouldn't have been able to sustain life much longer.They have her blood transfusions and began testing to find out what it was. I was home at this time as I wasn't feeling well at all that day and I can remember calling my mom in her hospital room and we were talking and she said to me "I don't know what it is but I really don't think I have cancer", Looking back now, I don't know if she honestly believed that or she said that to me out of fear trying to convince herself the opposite of something she allready knew without being told. I apprehensively agree'd but in the back of my mind I was fearing cancer and pancreatic as well because that morning I had been looking up her symptoms in my medical book and to my horror they all matched but I kept hoping and praying I was wrong.About 2 pm that afternoon the call came in from the stomach doctor who had been treating her and he told me that it was Pancreactic Cancer. I guess I instantly went into some kind of shock because I let out with a loud wail of pain and tears and dropped the phone. My husband finished the conversation for me. I knew what this diagnoses meant. It was a death sentance handed down in a matter of seconds. I was to call the doctor back and let him know if I wanted him to tell my mom or if I was going to do it. I was panicking, there was no way I could let a stranger tell her she was going to die and I couldn't look her in the eyes and tell her either. I didn't know what to do. So, I called my brother who wasn't home yet and spoke to my sister in law who also got hysterical when I told her what it was all about. A little bit later on my brother called back and I told him there was no way on earth I could tell mom she was going to die and I know it was a lot to ask of him but I didn't know what else we should do. She could NOT hear it from a stranger but I wasn't strong enough to do it. I was desperate. The end result was my brother told her. I still don't know what happened when he did as I wasn't there but I can only imagine the shock and terror she must have felt as well as my brother.I called my mom a little while after my brother spoke with her and all I can remember is me crying and telling her how sorry I was, I was so sorry this was happening. It was agonizing and as I write this I can still feel the agony I felt that day. The next 6 months had many changes. My mom moved in with me and my new husband. He then went and got 2 jobs and moved us into a house we rented 2 blocks away from my brother so she could be near her grandchildren which she cherrished. I took care of my mom on a daily basis, saw to her needs whatever they were at the moment, there were chemo treatments 3 times a week. We had a conversation just before her last treatment and she confided in me that she felt the chemo wasn't working, she said she could feel it spreading. Tragically she was right. We got the results of her 2 month ct scan and it had indeed spread to her liver. She came home that day and told me that she was told she had about 6 weeks to live at most. I just sat there. I felt like someone had ripped my soul from my body. Everything was out of control,I had no control, I couldn't make it better, I couldn't make her feel better, I couldn't stop it! It was REALLY happening and it was going to happen and there wasn't a damn thing I could do about it.Almost 6 weeks to the day I had to come to terms with the fact that allthough I told my mom I would care for her at home I could no longer do it. She could no longer move herself and I wasnt healthy enough or strong enough to give her the care she needed. So 24 hours before she passed I contacted hospice who had only been in twice before. They came to the house around 945 am, it was a Thursday morning. Mom was in an out of consciousness. The hospice nurse told me she was fighting and I was making the right decision bringing her somewhere , where they could make her as comfortable as possible and care for her as she needed. Then the bomb dropped. My soul was literally ripped from me , I felt it go, I was handed a paper called a DNR (Do not Resuscitate) and asked to sign it. They asked me if I knew my mothers wishes and she had told me she did not want any heroic measures taken but I never thought it would be ME who would have to sign that form. I thought my mom would sign it when it came time but she couldn't, she was too out of it.. I panicked. I didn't know what I was going to do, I knew I had to sign it but how could I? What if I was wrong? Was I killing my mother? What if, what if, what if,???????????????????????????????????????????????With tears rolling down my cheeks, clutching the hand of my husband and praying to the Lord in my mind and heart asking if I was doing the right thing, I signed it.. I felt dead. I had never know what it was to feel hollow inside until that very moment. I literally thought I was going to be sick. The ambulance finally showed up and it was another very hard moment. They had to move mom onto the stretcher and by this time she was just in pain all over her body and it hurt even just to be touched and she kept saying they were hurting her and thats when my brother lost it and started yelling at the EMT's. There was so much damn commotion in that bedroom, finally, I yelled, Stop! Everyone get out!!! Get out now!!.. To which they all retreated.. I was able to camly speak to my mom and explaine to her that I know how much she was hurting and that it would only hurt for a minute or two until they got her on the stretcher and into the ambulance and then she would be OK. She agree'd. So I let the Emts back in and everything was done calmly and quietly while the police took my brother out in the back yard and consoled him.The ambulance left and my brother followed behind and got her all set up in her room and on morphine for the pain. I stayed behind for my legs couldn't hold me up. The stress and emotional pain was too much. My brother stayed with her until late that night.Friday morning I called the hospital to check on her and was told she was OK and resting comfortably and get there when I could an do it safely. It took me a bit but I got myself together and made to the hospital I guess around 12 pm. I went into moms room and there she was resting so quietly and peacefully which was a huge relief from the day before. I remember her hands being so cold, I asked her if she was cold and she said no. Sitting there was agonizing, I was watching my mother, my Mom, my best friend, my everything slip away and I couldn't stop it. The anxiety was building and I didn't know if I was going to be sick or die with her. All I can remember saying over and over in my head was , Jesus, Mary, this is so bad, this is so bad.Suddenly out of nowhere in a non religious hospital, and something I had NEVER seen before and I spent a lot of time in that hospital over the years, a NUN popped up out of nowhere. In FULL habbit no less. She spoke so softly can calmly and with an irish accent. She saw how distressed I was, my poor husband was just sitting in the chair, watching me and watching my mom and I dont think he knew what in the heck to do. The poor man was in such an awkward place at the moment, he knew how much me and my mom were both hurting. The nun whos name I never did get took my hand and said "Sweetheart, I know your mom looks like she's suffering to you, but she's not. When is the last time you and your husband went out to dinner or did anything for yourselves?" I couldn't answer because I couldn't remember. She then said "Why don't you go out to dinner tonight?, your mom isn't suffering. Would you like to receive communion?" I said "I can't, I haven't been to confession (good catholic girl to the end), she replied" that does not matter at this time" At that time she administered confession, blessed both my husband and myself on our forheads and walked over to my mom, blessed her and touched her hand and then as fast she was there she as gone. I dont know where she went, I dont remember seeing her leave. I did however feel peace, unreal peace the entire time she was there. When she left though, suddenly the pangs of anixety came back and rose like a volcano inside me. I knew in my heart the end was imminent and coming quickly, something just "told" me this was it. I had to get out of there, I was going to explode so I rushed to grab my bag and suddenly I heard a voice in my head very clearly and very loudly say "don't leave like this, you will never see her again," I turned back, I was only about 3 steps from her bed, walked over to her, took her hand, started to cry and spoke to her through my thoughts, mom hadn't said anything to that point or opened her eyes, I told her in my thoughts that if she needed to go I understood and it was OK to go and I would be OK, it was Ok for her to go and be free from this. Then I spoke to her I said "I Love You Mom". My mom opened her eyes, looked at me and I knew she was no longer there because there was a deep void in her eyes she said to me "I Love You Too."That was when I left, my legs were weak and I needed a wheelchair to get out of the hospital. The ride home was only 5 minutes and when I walked in the door the phone rang. It was her oncologist telling me she had passed. I asked when he said 415, I wasn't even out of the hospital at that time, I was making my way down stairs. I firmly believe my mom was holding on and waiting for me to leave. She never ever wanted to scare me in life and I know she knew even then, that if she had gone while I was there I probably would have never recovered from it. But it was only moments after I was gone.The next phone call I had to make was too my brother and Im so thankful he didn't answer the phone, infact he was at work and the kids were out. I spoke to my sister in law who then called everyone home and they came to my house. The next few days would be the hardest days I'd ever have to face. I had a closed casket which I let my brother pick out because I just couldn't face it. I didn't want people remembering my Mom being sick and how badly the cancer has disfigured her. I wanted them to remember her as the young, vibrant, attractive woman she was. So it was closed with her favorite picture of herself ontop. It was taken at my first wedding and she looked simply amazing that day. The first day of the wake , my brother asked me if I wanted to go in there and view her with the family, I couldn't do it. I couldnt see my mom that way, I couldn't even breath, so while they went in I sat out in the hall with my husband hyperventilating and trying desperately to compose myself. It wasn't working..I left early that day, my body was giving out on me.We only had one viewing day. The second day was to be the service which was held at the funeral home and then onto the cemetary for burrial. I thank GOD for Barbara. I had sat in the back of the funeral room the entire 2 days. I couldn't get myself to sit up infront with my family and all those people, I could't handle it, I still can't. Barbara sat in the back with me on the day of the service and held me close, she knew what was happening inside of me. If it hadn't of been for her I wouldn't have made it. At the cemetary was when I broke, I could no longer stand up so I sat in the limo on the side of the ceremony and I broke, the tears, the pain all came flying out like a volcano waiting to explode. I remember my oldest step daughter coming over to the car and holding me. I couldn't stop it.Then after the service at the grave side it was onto the repass. I stayed for a little bit and then had to leave.. At first my family couldn't understand why I had to leave the funeral home early or the repass but then suddenly someone got a clue and they understood. My sister in law said to me, "It's Ok, you did all you could the last 6 months, it's up to us now"It is now almost 7 years later and my pain today is as fresh as it was the day I lost her. Will it ever get better? I dont know. My mom was everthing to me, we did everything together, we talked about everything, nothing was taboo we had a mother/daughter/best friend relationship that only a small blessed few have. She was like half of me. how do you replace half of yourself and become whole again? I never knew what loneliness felt like until her passing. I feel lonely most of the time, I feel as if I float through life in a cloud most days. I still want to call her all the time and then the reality hits that I can't. Or I'll have a dream about her still being here and I wake up and it realize it was just a dream and the pain hits with a significant blow.I lost my dad when I was a little girl of 9 and being that young I didn't go through what I go through now with the loss of my mom allthough, I have noticed the older I get the more and more I miss my dad. SO does it ever get better? I would love to be able to say yes but at this point in my life sadly, I can't.I called the hospital about 2 weeks after everything was over and inquired about the nun, I wanted to thank her for everything she did for us that day, to my amazement I was told they dont have nuns at that hospital, I said I know an I explained what happened the day my mom was there and the woman said , Ma'am I'm sorry but there are no nuns around in this hospital.SO where did she come from? Was she sent? Was she a gift from God to us? My heart says Yes.
Labels: cancer, death, dying, grief, loss, loss of a family member, loss of a loved one, loss of a mother, ma, mom, mommy, mother, pancreatic cancer